A friend sent this to me. If you live in the Washington, DC area and are able to attend please do so. If not, the family will be accepting donations. Please read the touching story below.
We are a charitable organization comprised of the friends and family of SeniyaFleming, the first child in the world to be documented with an extremely rare syndrome. We have come together to form the SeniyaFoundation, Inc. to raise funds for future diagnosis and treatment of medical illness as well as for her general care. We need your help to achieve this goal. Seniyawas born with only part of her Chromosome 1 gene, which is passed down from both parents.
Both of Seniya’s parents have all of their genes but due to this missing information in her DNA, Seniya has:
•holes in four of her heart valves
•fused arms (her arm and forearm bones are fused so that she has no elbows)
•no thumbs with an extra finger tip on her right hand
•a cleft palate such that her tongue rests in the back of her mouth, making it hard to breathe, chew, and drink. Due to these unexpected challenges, Seniyahas spent a lot of her life at John Hopkins Hospital.
At only two years old, Seniya has undergone:
•quadruple bypass heart surgery
•unsuccessful surgery to create a thumb from the extra finger on her right hand Seniyais now confronted with the beginning stages of facial deformities, which are likely to cause blindness. To correct these deformities and prevent blindness, doctors will have to operate in an area that contains her facial nerves. Therefore, the surgery could also lead to blindness and/or could also cause Seniyato lose her ability to smile.
Despite everything that Seniyahas endured in her first two years of life, she continues to laugh and give love to everyone. However, as she grows, her medical needs will increase. As you might imagine, Seniya’smedical condition requires much time and attention as well as many resources. Unfortunately, Seniya’sneeds has necessitated to full time on the spot care and attention that has resulted in her mother having to leave the workforce and her father to hold down several jobs in order to support their family of six.
The situation is further complicated by Social Security’s denial of the benefits to which she is entitled. At this time, we are seeking contributions to assist the family as they continue to try to provide for Seniya’sneeds without the benefit of public assistance.
This is why the SeniyaFoundation, Inc. would like to invite you and your friends to come out and participate in our Cell Phone-A-Thon by expecting and accepting our call on your cell phone that we will be making on:
Wednesday, September 15, 2010
6:00PM
New Community of GOD In Christ
12435C MattawomanDrive
Waldorf MD 20601
We will need volunteers to come out to the church and help make calls to the individuals in their contact list and request donations this support will help the family make this Cell Phone-A-Thon a success. If you are willing to volunteer and own a laptop please bring it with you to help with the processing of the donations.
If you cannot make it, you can also make donations online via Seniya'swebsite: www.helpingseniya.org
Showing posts with label health. Show all posts
Showing posts with label health. Show all posts
Monday, September 13, 2010
Thursday, July 22, 2010
Things to Do: Chris4Life Blue Crush Event
The Blue Crush event will be held at Stroga (1808 Adams Mill Rd NW, Washington DC) in the Adam's Morgan Section of DC. Doors open at 7:00PM. Guests will be treated to: artistic and live performances, art-themed auction, signature cocktails, savory bites, local DC celebrities and inspirational stories from notable colon cancer survivors.
The sponsors for the event in addition to Chris4Life are Stroga Yoga, Pamela's Punch, and the Pink Line Project.
To Purchase Tickets visit, http://chris4lifebluecrush.eventbrite.com/
Savvy Tip: Save $10 off of 1 ticket when you use code "pink". I purchased my ticket on 7/22 at 4:00PM and it worked.
All proceeds from ticket sales will benefit the Chris4Life patient, treatment and care program.
About the Chris4Life Colon Cancer Foundation
Welcome to Chris4Life ! We are a colon cancer Foundation based in the greater Washington, DC, area. Our story began in the spring of 2009 when we tragically lost a loved one to this disease. Chris Sapienza - a loving wife, dedicated mother of four, musician, and small business owner - touched the lives of many and inspired even more.
When Chris passed away after a courageous battle with colon cancer, we knew we needed to do everything in our power to halt this disease so others might be saved. That was the spark for the Chris4Life Colon Cancer Foundation. Our foundation is committed to eliminating the threat of colon cancer around the world. With your help we will find a cure.
Thursday, February 25, 2010
The Road to Health Care Reform
I very rarely blog about politics and political issues (with the exception of DC Mayor Adrian Fenty and School Chancellor Michelle Rhee) but this debate on Heath Care Reform really bothers me.
Today, someone tweeted that 16% of Americans are without health insurance. I questioned that statistic but turns out it is equal to 46 MILLION people. That's incredible! It's sad to think we live in America and so many of us are not covered by health insurance. I've been to third world countries and you could expect that from those societies, but here that just doesn't make any sense. How did this happen and why has it been going on for so long?
The main argument I hear is people think by creating universal healthcare they are going to lose their own premium coverage or that they'll be paying for other people. While that may be partially true, that's the way of the world. We pay taxes don't we? I'm young, single and don't have children but my taxes pay for education, welfare, social security and a number of other benefits that I'm not eligible to receive but I'm not complaining.
I have friends who have jobs but may be working in temporary positions or doing contract work here and there and they don't have insurance. I'm always worried about what if something happens to them. It's not their fault they don't have insurance and premiums are too high for them to be able to afford them without having an employer who's willing to subsidize it.
When will the Powers-that-be come together and pass Health Care Reform? Are we really that selfish and greedy? People shouldn't be living in poverty and without health insurance in America of all places. Something has to be done.
Today, someone tweeted that 16% of Americans are without health insurance. I questioned that statistic but turns out it is equal to 46 MILLION people. That's incredible! It's sad to think we live in America and so many of us are not covered by health insurance. I've been to third world countries and you could expect that from those societies, but here that just doesn't make any sense. How did this happen and why has it been going on for so long?
The main argument I hear is people think by creating universal healthcare they are going to lose their own premium coverage or that they'll be paying for other people. While that may be partially true, that's the way of the world. We pay taxes don't we? I'm young, single and don't have children but my taxes pay for education, welfare, social security and a number of other benefits that I'm not eligible to receive but I'm not complaining.
I have friends who have jobs but may be working in temporary positions or doing contract work here and there and they don't have insurance. I'm always worried about what if something happens to them. It's not their fault they don't have insurance and premiums are too high for them to be able to afford them without having an employer who's willing to subsidize it.
When will the Powers-that-be come together and pass Health Care Reform? Are we really that selfish and greedy? People shouldn't be living in poverty and without health insurance in America of all places. Something has to be done.
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